Daddy Update

Well daddy came home Wednesday nite with Hospice care. He seems to be doing better. I got to ride in the front of the ambulance when they brought him home! He had a tracheotomy a week ago so they didn't feel comfortable with him leaving in a regular vehicle. We got him all settled in and ready to go. The nurses checked him out and we started unpacking all the supplies the hospice brought and the hospital gave us. It was alot! The nurse set up his feeding tube pump. Well about midnight daddy said he was feeling nausea so I turned it off and disconnected it. I gave him some Zofran, but that didn't help he ended up getting sick. I panic of course and the nurse tells me it'll be ok just make sure his trachea stays clean and clear. That is the only thing I can't handle! He didn't sleep too good that night so neither did I, but his recliner is ALOT more comfortable than the one at the hospital.

Thursday he had a really good day. I woke up and noticed the feeding tube bag had come apart and leaked all over the rug. It was already soaked up so there was nothing I could do. The aide came out and cleaned him up which of course he didn't like cause he was cold. lol. It was Noah's birthday party so my sis was suppose to come over early so I could show her what to do. Instead she shows up over 30 min late! The nurse was still here so he showed her most of the stuff and of course she didn't ask any questions. Well he hooks up the feeding tube pump and leaves. Well a little bit later daddy's feeling sick again so my sis turns the pump off but never disconnects it from his stomach!!! Thanks goodness the tubing on the bag broke cause he would have ended up with over 400mL in his stomach! She's in a panic and on the phone with the nurse cause she thinks it all went in his stomach. The floor was too soaked for that. The nurse drives 40 min thinking she has a patient in severe pain and everything else cause all this fluid was drained into his stomach. Well she gets here and of course my sis has already left by then. So we had to figure it out all on our own. Thank goodness my sis can't keep her story straight cause there was nothing in his stomach! Needless to say because of that incident daddy was worried about me leaving him with someone else. So I ended up having to miss work again and stay home with him. He had a pretty rough day. Coughing up alot of phlegm thru his trach. He didn't eat at all and was in alot of pain. The nurse ended up increasing his pain patch and his instant relief morphine pills. He slept thru the night!!!!! So exciting!!! Today he had a really great day too and actually let me feed him some thru his tube.